Over the couple of weeks, I have been going to the SEN Teacher website to make PECS cards for Pookie. This website is such a blessing! When you go to their home page, run you cursor over the “Print” tab then click on “AAC Printables” from the drop down menu. On this page, you can customize PECS cards in the photo format or the familiar line drawings format. They give you many options for borders as well as fonts and card sizes.
Back when Pookie was first diagnosed with Infantile Autism (aka Autism Disorder, Classic Autism), the specialists recommended that he be taught to use PECS. They included the instruction however that he would have to be taught to interact with someone first. He was in his own world back then and did not interact unless he was hungry. When hungry or thirsty, he would fuss until you figured it out, then he would gladly accept your feeding him or holding his bottle.
We began Early Intervention about 1 week after his autism assessment evaluation. It had been a long 10 month wait for it to start. I had contacted their office in mid-September of the previous year on 3 occasions only to have his case slip through the cracks. Finally, after his evaluation, I called one of the resources we were given the information for. They were able to put in a call to the state level and his Early Intervention was started immediately.
One of the communication topics that came up was PECS in our first meeting. I was interested but hesitant. They never spoke of working with him to get the level of interactive behavior necessary to make PECS successful. I had my reservations at that point. The speech therapist that came out to our home played with him but did not actively work with him to try and develop his speech. He was making a few letter sounds and could say “Da-da” or say “Ee-ee” for the word eat. My expectation was that she would build on the sounds he could make. But it didn’t happen.
A child development specialist came to the home in place of an occupational therapist or physical therapist. She spoke more to me about PECS, but again the groundwork wasn’t being laid down. She took pictures of Pookie’s favorite toys, sippy cup, peanut butter jar, and yogurt container. When she returned the following week, she brought the pictures. They were 5×7 inches in size and laminated. Her instruction was simply to have him bring you the picture for what he wants. No instructions on how to train him to do that. Again, I felt lost.
Fast forward 3 years to today. I have been feeling the need for PECS to be used again. Problem was, I still had no instruction in how to implement it. I started searching on YouTube for videos that demonstrated the PECS communication system in use. I was amazed at how many there are. Some when step by step, with one video dedicated to each of the 6 phases of training. Finding the SEN Teachers website where I could print out cards was an additional blessing. I made the cards using graphics that I had for his homeschool subjects as well as pictures of his fine motor activities. Next, I made a sheet of them with his sports bottle and favorite foods. The last sheet was a few of his favorite toys and graphics for his “Tokens” to use on his “I am working for” incentive chart.
I didn’t have access to a laminator right away so printed the picture cards out on cardstock and added the self-adhesive hook (rough portion of the hook and loop) onto the backs of the cards. I bought a small 3-ring binder that holds half-sheet size pages. On the outside cover, I placed 3 rows of the fuzzy portion of the hook and loop dots. Inside of the binder, I will be placing laminated half sheets of cardstock to use for storing his cards. One note that I wanted to mention. Many website that tell how to make these binders or visual schedules instruct to place the rough portion onto the outside of the binder or the visual schedule and use the soft portion on the backs of the cards. I disagree. If we accidently brush our hand (or arm if on a wall mounted visual schedule) against the binder, I would much rather feel the soft portion than the rough. It is totally a personal preference however.
For my own purposes, I have an extra sheet of each set of cards printed out onto paper with a sheet of plain cardstock behind it in sheet protectors. These are my indexing sheets that I keep in my own file. I keep all of his cards in my file at this point. Having an indexing sheet allows me to know which card is missing. Later when he is keeping his cards in his binder, I will have only the indexing sheets for the purpose of replacing a lost card.
When he gets a PECS system from his speech therapist, this small one will be used at his Grandparents’ home when he is there for the day. I will be making up a set of cards specific to the foods she provides for him as well as any other cards she may want him to have. A second small travel PECS book will be used in his Sunday School class with cards in it that his teacher requests.
Teaching Pookie to use the cards has been less stressful than I thought it might be. He is old enough to catch on fairly well. I began with his favorite sweet, Skittles. Those are a real treat for him as I do not allow the kids to have candy very often. I placed a card for the Skittles and one for a favorite game onto his binder. When asked what he wanted, he gestured for the Skittles. I then pointed to the card and asked him to hand it to me. He fussed at first, but quickly complied. Once I had the card, I praised him for it and gave him 2-3 Skittles. As he ate them, I replaced the card. Some of the time, I would switch the card positions so that he was not just giving me the card in the right hand side, but had to actually find the right card. We worked at it for 20 minutes and by the time we were done, he was using the card completely on his own.
I am keeping it simple right now. Preparing to start up with a new therapy center, I want to wait until I have a chance to speak with the speech therapist there before moving too far forward. I don’t want to do anything that might make she job more difficult, such as inadvertently skipping a step in the training process.
It has been great though. He has asked for peanut butter on a bagel for lunch one day using his cards. You can see that he grasps the concept at least on this level. It is such a leap forward for him. I cannot wait to see how he progresses as he finds his voice through the PECS communication.
My husband made a video of Pookie using the PECS cards. Unfortunately, that particular digital camera does not record sound. You can watch however and get an idea of what we were doing. We will be making more videos using my phone so that we can record the sound as well. If interested in watching the video, you can find it on YouTube.